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So far Daniel Zlatin has created 140 blog entries.

Abstracts from IWWM-12 and ASH

2024-12-09T06:32:58-05:00

From the science desk, a report on: The 12th International Workshop on Waldenström’s Macroglobulinemia (IWWM-12) that took place in Prague, Czech Republic from October 17-19, 2024 where leading experts gathered to discuss the latest advances in the understanding and treatment of WM, and The 66th annual meeting and exposition of the American Society of Hematology (ASH) that took place in San Diego, California from December 7-10, 2024. The WMFC reviewed all of the IWWM-12 abstracts submitted in Prague and found that very many of the presentations/posters simply confirmed the work of others.  For example, several abstracts confirmed three WM lineages: B [...]

Abstracts from IWWM-12 and ASH2024-12-09T06:32:58-05:00

Dr. Shirley D’Sa on Bing Neel and Neuropathy

2024-11-18T15:39:08-05:00

The WMFC was delighted to be able to bring you Dr. Shirley D'Sa from University College London (UK) Hospitals.  She presented to us on Friday Nov. 15th, 2024. Dr. D'Sa discussed two topics: Peripheral Neuropathy (PN), a common condition experienced by people with WM. Bing-Neel Syndrome, a less-common complication of WM. For both of these, Dr. D'Sa addressed the symptoms of these conditions, how they develop, how you can enable a swift and accurate diagnosis and how it is recommended to treat these conditions. We came away understanding that Peripheral Neuropathy is far more complex than one might have thought and [...]

Dr. Shirley D’Sa on Bing Neel and Neuropathy2024-11-18T15:39:08-05:00

Check your Junk / Spam Folders!

2024-11-04T12:14:08-05:00

There have been changes in "the cloud" world recently, out of our control.  We're told that Google and other email organizations are tightening up their email filtering rules.  So emails from your WMFC might be ending up in your Junk or Spam email folders. And we hope you don't think they are either Junk or Spam! So please check your Junk and/or Spam folders to see if any recent emails from the WMFC have ended up in there.  If so, there might be some settings you can change so that email from any address ending in @wmfc.ca is not to be [...]

Check your Junk / Spam Folders!2024-11-04T12:14:08-05:00

Our September Newsletter

2024-09-26T18:34:18-04:00

The leaves have begun to change. And with that a variety of colourful subjects have been included in this newsletter’s topics, the first of which is “What’s up with WMFC in Canada?”, excerpts from a presentation by Cam Fraser to the board of the IWMF. And in other news articles, our September Newsletter covers “You’re Not Alone” WMFC Population Statistics from 2021 to 2024 What Your Heart Asks and Your Pocket Can Afford, by Anne Moffat, North Bay, Ontario Eastern Ontario Support Group Potluck Enjoy all of these titles in our September Newsletter available here!

Our September Newsletter2024-09-26T18:34:18-04:00

New WM Clinical Trial on the West Coast: Treatment Naive and R/R

2024-08-07T20:38:48-04:00

NCT05952037 (https://clinicaltrials.gov/study/NCT05952037) is using a new BCL-2 inhibitor, Sonrotoclax, and is strictly for WM patients.  The trial is world-wide, but is recruiting in just one location in Canada, in North Vancouver, at the Lions Gate Hospital Chemotherapy Clinic.  It has several arms running in parallel:  one is for treatment-naive patients; the other three are for Relapsed/Refractory patients with various treatment histories.

New WM Clinical Trial on the West Coast: Treatment Naive and R/R2024-08-07T20:38:48-04:00

Another Canadian WM Clinical Trial

2024-08-07T20:14:21-04:00

Our intrepid West Coast reporter has pointed out a new clinical trial is recruiting WMers in Canada!  Although to take advantage of it, you have to be near, or be able to travel to, Vancouver. This trial, NCT05952037 (https://clinicaltrials.gov/study/NCT05952037), is using a new BCL-2 inhibitor, Sonrotoclax, and it is strictly for WM patients.  The trial is world-wide, but is recruiting in just the one location in Canada.  According to the clinicaltrials.gov website, that Canadian location is in North Vancouver, at the Lions Gate Hospital Chemotherapy Clinic. Interestingly, the trial has several "arms" running in parallel.  One of those arms is for [...]

Another Canadian WM Clinical Trial2024-08-07T20:14:21-04:00

Accessing BTKs in Canada: a Doctor’s Comments

2024-05-24T18:24:43-04:00

In this (audio only) podcast, two doctors discuss the results of the Phase 3 ASPEN trial, which compared the efficacy and safety of zanubrutinib with that of ibrutinib.  But the second doctor is Dr. Carolyn Owen, Hematologist and Associate Professor of Hematology in Calgary.  She speaks (from about the 20:40 point onward), and includes comments on the challenges of accessing BTKi's in Alberta (and by extension, many provinces in Canada) and the rationale for the typical prescribing pattern for WM patients: BR first, and then BTKi's.

Accessing BTKs in Canada: a Doctor’s Comments2024-05-24T18:24:43-04:00

Our May newsletter: Support Groups

2024-05-24T12:35:42-04:00

Our newsletter this month is all about Support Groups. But don't let that term "support" put you off -- if you feel you don't need support, then maybe the support group needs you. We’re all treading a slightly different path with our WM so what you’ve learned and experienced along the way, and perhaps now take for granted, might be a gem of insight or information for someone just starting out. Just to say there are all kinds of reasons for attending a Support Group meeting. Some think of them as a community of like-minded people; others need some of that [...]

Our May newsletter: Support Groups2024-05-24T12:35:42-04:00

Our $200,000 Campaign!!

2024-05-11T07:21:29-04:00

Thanks to our members’ generous donations over the past, we have been able commit to funding two exciting new research projects.  Now comes the hard part – we need to raise $200,000.  Our thermometer will keep track of our accomplishments as this progresses.  We'll update this post from time to time, to track our progress. In partnership with the IWMF, we are funding these two major WM research projects: We are supporting another research project with Dr. Zachary Hunter at the Dana-Farber Cancer Institute at Harvard University.He is looking ever more closely at the inner workings of WM with a [...]

Our $200,000 Campaign!!2024-05-11T07:21:29-04:00

Our April Newsletter: Got Test Anxiety?

2024-04-14T12:02:57-04:00

As WMers, people with a chronic disease, we are subject to regular medical tests. And with those tests comes medical test anxiety. We all get it, whether all the time, or only at major points in our journey with WM. It’s a common and understandable emotional response. Our April newsletter takes a look at the physiological, psychological and emotional responses that make up medical test anxiety so you can recognize them in yourself at test time. And, more importantly, we look at what you can do to understand and manage these instinctive and powerful responses. Follow this link for our discussion [...]

Our April Newsletter: Got Test Anxiety?2024-04-14T12:02:57-04:00
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