Daniel Zlatin, Author at Waldenstrom's Macroglobulinemia Foundation of Canada

The BC Support Group: Supporting One Another in So Many Ways

2021-08-07T11:30:47-04:00

Our group started over fifty years ago! Well, not really, but... In 1966 I met Betty McPhee in Vancouver. Three years later she was married and living in Philadelphia. I was working on a medical team in West Africa. It was over forty years later when we met by accident over coffee in a church in Toronto, where Betty and her husband now live. But we had no time to visit -- I was flying back to Vancouver later that day. We agreed to connect on Facebook. And that’s where Betty learned later that my husband had been diagnosed with a (non-WM) [...]

The BC Support Group: Supporting One Another in So Many Ways2021-08-07T11:30:47-04:00

How many antibodies does it take to keep a WMer safe from Covid-19?

2021-08-05T18:09:17-04:00

This very frequently asked question was addressed, recently, on the IWMF Connect email list. This particular answer deserves wide coverage, so for those of you who haven't seen it, it is copied here. Unlike well-known and well-researched and stable diseases, such as, say, measles, there just has not been sufficient time to do the research into all of the many factors that go into human immunity to Covid-19. How many antibodies does it take to keep a WMer safe, and is there a test to count them? It's an impossibly hard question to answer: The more virulent a viral variant is, [...]

How many antibodies does it take to keep a WMer safe from Covid-19?2021-08-05T18:09:17-04:00

Betty McPhee: Providing Hope by Telling My Story

2024-01-21T18:48:08-05:00

Betty McPhee (1945-2023) The WMFC is sad to note the passing of Betty McPhee, the vice-Chair of the Board of the WMFC. Betty McPhee has played many roles in making the WMFC what it is today. She has served as a Vice Chair of the Board and as Chair of Membership Services. She not only was co-leader of the Toronto Support Group but had a major role in starting Support Groups across Canada. She was a very welcoming person and always ready to help others navigate their WM journey by providing insightful suggestions. She was an amazing and dedicated individual [...]

Betty McPhee: Providing Hope by Telling My Story2024-01-21T18:48:08-05:00

Webcast: Canadian Clinical Trials and Access, for Lymphoma Patients

2021-07-03T13:25:57-04:00

What would you like to know about participating in a Clinical Trial in Canada? Dr. Neil Berinstein, known to many of our readers, walked through many, many of the questions one might have. Think of it as "Clinical Trials 101". This was presented as a webcast through Lymphoma Canada on June 29, 2021. Dr. Berinstein himself is running a WM-specific clinical trial right now, so this is definitely appropriate to our WM community. For the description of the event from Lymphoma Canada, click here. And to view the webcast, you will have to click here, and supply your name and email [...]

Webcast: Canadian Clinical Trials and Access, for Lymphoma Patients2021-07-03T13:25:57-04:00

WMFC: Launching Canadian WM Blog + Research Month Success

2021-06-26T15:50:42-04:00

June 2021: Introducing the New Canadian WM Blog Join the IWMF Research Month: Wow! The new WMFC Board of Directors Canadian WM Blog The Editorial Group of the WMFC is pleased to present the first in a series of Blog posts on topics of interest to Canadian WM patients. Whether it is new treatment options, status of drug approvals, clinical trial results or how your research money is being spent, we will do the research and provide to you a clear and concise report on the topic. We start the series with a focus on an important Clinical Trial in [...]

WMFC: Launching Canadian WM Blog + Research Month Success2021-06-26T15:50:42-04:00

National Zoom: The Management of WM in Canada

2021-06-16T17:11:04-04:00

We were privileged to have Dr. Christine Chen, from Toronto's Princess Margaret Cancer Centre, give us an overview of how WM is managed in Canada. She covered both BR (the standard of care pretty much across Canada), and discussed how newer treatments are being picked up. And there was time for a question-and-answer session, as well. You will need a passcode to view the recording: 5Rm64fh* -- if you are copy-and-pasting it, make sure you pick up the asterisk (*) at the end, as it is part of the passcode. And make sure you do not inadvertently pick up a [...]

National Zoom: The Management of WM in Canada2021-06-16T17:11:04-04:00

World-class WM clinical trial in Canada

2021-06-26T15:39:36-04:00

This first article in our new, Canadian-focussed series, explores an important new WM clinical trial that is now up and running in Canada. This trial presents a unique opportunity for previously untreated WM patients who now require treatment for the first time. As a Canadian WM clinical trial, there are no trial costs associated with it for the patient. This trial is headquartered out of Sunnybrook Health Services Centre in Toronto, and the principal investigator is Dr. Neil Berinstein, who is well known and respected within the WM community. The trial is also now running at BCCancer in Vancouver. Halifax , [...]

World-class WM clinical trial in Canada2021-06-26T15:39:36-04:00

WhiMSICAL Project Seeks Participants, Updated Information; You Can Help!

2021-06-20T16:45:41-04:00

The WhiMSICAL registry, built through a patient-clinician investigator partnership, is a global database for WM patients to enter their own data. Results of the WhiMSICAL study have just been published in the prestigious American Journal of Hematology (see https://onlinelibrary.wiley.com/doi/10.1002/ajh.26173). Key findings include the longest time to next treatment after 1st line therapy in patients treated with bendamustine rituximab, and a better quality of life in those on BTK inhibitors compared to recent chemotherapy. Over 450 patients from 19 countries contributed to this first global registry for WM. Thank you to all who entered their data into the WhiMSICAL Registry. Your efforts [...]

WhiMSICAL Project Seeks Participants, Updated Information; You Can Help!2021-06-20T16:45:41-04:00

Announcement concerning the Chair of the WMFC

2021-06-01T12:16:32-04:00

On May 19, 2021 the WMFC held its Annual General Meeting. At the end of the meeting Paul Kitchen announced that he would be stepping down as Chair of the Board after two years in this role. This is what he wrote in the WMFC May Newsletter: “Tonight at the AGM I will be stepping down as Chair of the Board. I have been Chair for more than two years and have very much enjoyed this role. As you all know, living with WM takes its toll and I do not at this time have the energy to continue as Chair. [...]

Announcement concerning the Chair of the WMFC2021-06-01T12:16:32-04:00

Research Month and May Update

2021-05-31T20:33:58-04:00

Research Month On behalf of the WMFC Board I would like to thank all those who have made a contribution to this year’s Research Month. It has been a great month for the WMFC and you have enabled the Board to fulfil the commitments it has made to support leading research in both the United States and Canada. It is never too late for those who would like to send in a contribution towards the research work the WMFC is supporting. Paul’s Walk to Support Research Month May has been a long and very cool month in New Brunswick and by [...]

Research Month and May Update2021-05-31T20:33:58-04:00

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About Daniel Zlatin