Daniel Zlatin, Author at Waldenstrom's Macroglobulinemia Foundation of Canada

World-class WM clinical trial in Canada

2021-06-26T15:39:36-04:00

This first article in our new, Canadian-focussed series, explores an important new WM clinical trial that is now up and running in Canada. This trial presents a unique opportunity for previously untreated WM patients who now require treatment for the first time. As a Canadian WM clinical trial, there are no trial costs associated with it for the patient. This trial is headquartered out of Sunnybrook Health Services Centre in Toronto, and the principal investigator is Dr. Neil Berinstein, who is well known and respected within the WM community. The trial is also now running at BCCancer in Vancouver. Halifax , [...]

World-class WM clinical trial in Canada2021-06-26T15:39:36-04:00

WhiMSICAL Project Seeks Participants, Updated Information; You Can Help!

2021-06-20T16:45:41-04:00

The WhiMSICAL registry, built through a patient-clinician investigator partnership, is a global database for WM patients to enter their own data. Results of the WhiMSICAL study have just been published in the prestigious American Journal of Hematology (see https://onlinelibrary.wiley.com/doi/10.1002/ajh.26173). Key findings include the longest time to next treatment after 1st line therapy in patients treated with bendamustine rituximab, and a better quality of life in those on BTK inhibitors compared to recent chemotherapy. Over 450 patients from 19 countries contributed to this first global registry for WM. Thank you to all who entered their data into the WhiMSICAL Registry. Your efforts [...]

WhiMSICAL Project Seeks Participants, Updated Information; You Can Help!2021-06-20T16:45:41-04:00

Announcement concerning the Chair of the WMFC

2021-06-01T12:16:32-04:00

On May 19, 2021 the WMFC held its Annual General Meeting. At the end of the meeting Paul Kitchen announced that he would be stepping down as Chair of the Board after two years in this role. This is what he wrote in the WMFC May Newsletter: “Tonight at the AGM I will be stepping down as Chair of the Board. I have been Chair for more than two years and have very much enjoyed this role. As you all know, living with WM takes its toll and I do not at this time have the energy to continue as Chair. [...]

Announcement concerning the Chair of the WMFC2021-06-01T12:16:32-04:00

Research Month and May Update

2021-05-31T20:33:58-04:00

Research Month On behalf of the WMFC Board I would like to thank all those who have made a contribution to this year’s Research Month. It has been a great month for the WMFC and you have enabled the Board to fulfil the commitments it has made to support leading research in both the United States and Canada. It is never too late for those who would like to send in a contribution towards the research work the WMFC is supporting. Paul’s Walk to Support Research Month May has been a long and very cool month in New Brunswick and by [...]

Research Month and May Update2021-05-31T20:33:58-04:00

May 2021 WMFC Newsletter

2021-05-19T17:47:34-04:00

A reminder that tonight is the AGM at 7:00pm EST. A zoom link is below. Our AGM is not very exciting but all are welcome to view. WMFC AGM via Zoom Time: May 19, 2021 07:00 PM Eastern Time Join Zoom Meeting https://us02web.zoom.us/j/8573940250 Meeting ID: 857 394 0250 Thank you very much for all the support for both Research Month and the “Walk 10K a Day in May”. The walk and those supporting it have raised over $20K. Thank you. I have been inspired by your enthusiasm and support. Tonight at the AGM I will be stepping down as Chair of the Board. [...]

May 2021 WMFC Newsletter2021-05-19T17:47:34-04:00

May is Research Month!

2021-04-24T13:23:28-04:00

Each year the WMFC has only two fundraisers. One is for Research Month and the other is an end of year general appeal. May 2021 is this year’s Research Month. We are hoping to raise sufficient funds to support the ground-breaking research that the WMFC is investing in. On our May is Research Month page, you can read about the research that the WMFC is currently funding. And this year, the chair of the WMFC, Paul Kitchen, has set himself a goal: he will walk 10 km per day, every day of the month of May, to raise money for WM [...]

May is Research Month!2021-04-24T13:23:28-04:00

April 2021 WMFC Newsletter

2021-04-18T20:55:57-04:00

National Zoom Meeting On Wednesday, April 7, at 7:00 pm EST, there will be a national WMFC Zoom meeting where we will discuss a number of topics that will be of interest to all Canadian WMers. One of the topics that will be discussed is a new clinical trial in the US that one of our members is on. Please join us. Here is a link to the meeting: Join Zoom Meeting https://us02web.zoom.us/j/84048441505 Meeting ID: 840 4844 1505 Research Month May 2021 will be Research Month for the WMFC. We are proud of the research we funded in the past. We want [...]

April 2021 WMFC Newsletter2021-04-18T20:55:57-04:00

Health Canada Approves Zanubrutinib

2021-03-19T12:20:22-04:00

Zanubrutinib Approved by Health Canada Today we received notification that Health Canada has accepted Zanubrutinib as a WM treatment. Here is a link to the announcement from BeiGene: https://ir.beigene.com/news-releases/news-release-details/health-canada-approves-brukinsar-zanubrutinib-treatment Zanubrutinib is another BTK inhibitor and has tested to have had fewer side effects. This is good news for WM patients who will have one more option of treatment available to them. Lymphoma Canada Survey The next step for Zanubrutinib to be funded in Canada is for a submission to be made to pCODR and INESSS. In January the WMFC sent you a link to a survey which many of you [...]

Health Canada Approves Zanubrutinib2021-03-19T12:20:22-04:00

National Zoom: New Canada-Based WM Treatment Trial

2021-03-19T12:19:39-04:00

At our National Zoom meeting on February 3, 2021, our guest was Dr. Neil Berinstein of the Toronto Sunnybrook Hospital and Odette Cancer Research Program. For the first time in several years, we were able to hear about a clinical trial being started in Canada. Dr. Berinstein, the principal investigator, explained the rationale for the choice of treatments being combined in this trial. The trial involves the Canadian "standard of care" treatment (Bendamustine plus Rituximab), combined with a one-year, time-limited use of Acalabrutinib. The trial is described more formally at this Clinical Trials.gov site. To see the video of our [...]

National Zoom: New Canada-Based WM Treatment Trial2021-03-19T12:19:39-04:00

Covid-19 Vaccine Rollout: Every Province and Territory

2021-01-30T20:39:14-05:00

Lymphoma Canada has done us a service by collecting together links to the rollout plans for Covid-19 vaccines, for all provinces and territories. Obviously, these plans will change over time, so you will want to check back periodically to your province’s or territory’s plan. This table comes from a report that Lymphoma Canada has put together, answering important questions that lymphoma patients might have about the Covid-19 vaccines. According to Lymphoma Canada: Lymphoma Canada, along with the help and support of our Scientific Advisory Board consisting of leading hematologists and oncologists from across Canada, have created a report addressing [...]

Covid-19 Vaccine Rollout: Every Province and Territory2021-01-30T20:39:14-05:00

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About Daniel Zlatin