Learning from a life "punctuated by a cascade of medical events", Carol advises that it is important to be a partner with your doctor. "It's not just about finding the right medicine; it's also about sustaining positive attitudes", she writes.
Murray Shaw (1945-2023) Ed note: It is with great sadness that we note the death of Murray Shaw, one of the Support Group co-leaders for Ottawa. Murray has been a member of the group for many, many years, and was always willing to talk with all members – new and old – who needed information about WM or to learn more about their options. Murray was always sociable and welcoming. He and his wife Aileen were always volunteering their home for the summer barbecue social, and at our Christmas luncheon, Murray always insisted on paying for the wine – he [...]
Stu relates his 18-year-and-counting journey with WM, and concludes: "Nothing is going to get in my way of striking things off my 'bucket list'".
Besides being a Support Group Leader for the Atlantic Support Group, Ron Ternoway has led the way in multiple clinical trials. In 2021, he recorded this 15-minute podcast about WM and his journey with it, for the Leukemia & Lymphoma Society of Canada. "It was such a treat to do this with George Athans, who was once a world champion water skier and a Montreal TV sportscaster", said Ron. Ron has since produced a slide deck, "15 Years a Wallie", giving us a visual way to join him through his journey. Truly an inspiration!
The organization CancerCare put together a workshop entitled “For Caregivers: Coping with a Loved One's Waldenstrom’s Macroglobulinemia”. It brought together: Carolyn Messner (director of Education and Training at CancerCare), Carl Harrington (chairman of the IWMF), Dr. Jeffrey V. Matous (from the Colorado Blood Cancer Institute), and Georgie Cusack (Director of Education and Patient Safety, National Institutes of Health). You can listen to the workshop at the following link. For Caregivers: Coping with a Loved One's WM
The organization CancerCare put together a workshop entitled "The Latest News in the Treatment of Waldenstrom’s Macroglobulinemia". It brought together: Carolyn Messner (director of Education and Training at CancerCare), Carl Harrington (chairman of the IWMF), Dr. Christian Buske (a noted WM researcher from Germany), and Dr. Steven Treon (from the Bing Center for WM at the Dana Farber Cancer Institute). You can listen to the workshop at the following link. Dr. Treon and Dr. Buske, "The Latest News in WM"
The Toronto support group invited Dr. Treon to join them. He led them through a discussion of how the research on BTK inhibitors is progressing towards new drug offerings. View the recorded Zoom session at the link below. Dr. Treon presents Next Gen BTK Inhibitors
In mid-2020, Dr. Zachary Hunter spoke at an Atlantic Support Group Zoom Meeting. Click on the link below to view his presentation entitled “What is New in Waldenstrom’s Macroglobulinemia Research?”. His talk is followed by a question and answer session. Dr. Hunter's Presentation and Q&A
Dr. Jorge Castillo participated in a Zoom meeting with the Philadelphia support group. They recorded the session and kindly shared it with all of us. The link and password for viewing are available at the IWMF page, below. Dr. Castillo "Ask the Doctor"
On Dec. 23, 2020, our sister organization the IWMF issued a list of Q&A on the subject of Covid-19. The bottom line is: "When asked whether WM patients should be vaccinated for COVID-19, every WM specialist contacted agreed that it would be prudent to do so but to consult with your cancer doctor first." IWMF COVID-19 NEWS BRIEF – DECEMBER 2020 The coronavirus (COVID-19) pandemic has affected the global community, with each country developing safety protocols of different types and durations. We know that the IWMF community has many questions about the vaccine, and we hope this news brief offers [...]
